Date: July 8, 1998
Contacts: Dan Quinn, Media Relations Officer
Dumi Ndlovu, Media Relations Assistant
(202) 334-2138; e-mail <news@nas.edu>

EMBARGOED: NOT FOR PUBLIC RELEASE BEFORE 11 A.M. EDT WEDNESDAY, JULY 8

NIH Should Seek Greater Public Input
When Setting Research Priorities

WASHINGTON -- The National Institutes of Health (NIH) should seek broader public input on decisions about how to spend its nearly $14 billion budget, says a new report from a committee of the Institute of Medicine. The criteria that NIH uses to set priorities for funding research are scientifically sound, but could be improved and better accepted if the public had more say. The agency should create new public liaison offices in the office of the director and in all of its 21 research institutes to allow interested people to formally take part in the process. Further, it should strengthen the role of the director to improve planning and accountability, the report says.

"By creating formal links to the general public, NIH can ensure that all have a voice in what gets funded, and that more people understand how such decisions get made," said committee chair Leon Rosenberg, professor, department of molecular biology and Woodrow Wilson School of Public and International Affairs, Princeton University, Princeton, N.J. "Ultimately, this input will help NIH apply the knowledge it advances to the best use for society."

NIH is the single largest funder of health research in the United States, and research it has supported has been pivotal to the explosion of biomedical knowledge over the past century. Scientists and clinicians trained and supported by NIH have advanced the fundamental knowledge of human biology and ways to treat or prevent disease and promote good health. As NIH's success has grown, so has pressure in recent years from advocacy groups and other members of the public to devote more spending to their health concerns.

Some of NIH's institutes have offices devoted to soliciting public views. These offices should be established in all of the institutes, the report says, and each should document its efforts to generate public input. A new central Office of Public Liaison should be established within the office of the NIH director to evaluate and coordinate the work that each institute is doing to reach out to the public, and to work with groups concerned about cross-cutting issues. In addition, the NIH director should establish a council of public representatives. Its function would be to act as a forum for a two-way exchange of information between the NIH director and the public. It would not set priorities regarding the NIH budget or its research programs.

Guiding Criteria

NIH currently uses five major criteria to set its overall priorities: public health needs; scientific quality of the research; potential for scientific progress; portfolio diversification along the broad and expanding frontiers of scientific knowledge; and support of the people, equipment, instrumentation, and facilities needed for research.

The agency should continue to use these criteria in a balanced way, the committee said, and should increase public awareness of how they are implemented. NIH should be able to show, for example, that it systematically has compared data on the burdens and costs of particular diseases against the resources devoted to them. Such calculations can be difficult, since research cannot successfully address all health problems, and since fundamental research often leads to unexpected applications. But to enhance the legitimacy of the agency's priority-setting process, these data should be obtained more systematically and consistently. Furthermore, combining these data with information on spending by other organizations could help NIH identify opportunities and gaps in current research.

Currently, most priority setting at NIH is decentralized, with each institute given responsibility for identifying key research opportunities in its area. The NIH director needs more authority to help ensure a unified, agency-wide planning process, and to coordinate research that cuts across institutes. The director should require annual multi-year strategic plans from all institutes, and use this information in overseeing the priority-setting process. And Congress should make needed adjustments to the level of funding for research management and support so that NIH can improve its capacity for analysis, planning, and public interaction.

Congressional Intervention

Congress has the authority and responsibility to intervene in NIH's priority-setting process if it thinks that the agency is neglecting an opportunity or is not responding to a need. Congress should exercise this authority only when other priority-setting approaches have proved inadequate, the report says.

NIH should provide Congress with analyses of how it is responding to public input. The NIH director also should periodically review and report on the organizational structure of the agency in light of advances in science and the changing health needs of the public. By demonstrating that its priority-setting process is fair and open, NIH can reduce the likelihood that Congress will mandate specific research programs, establish levels of funding for them, or implement new organizational entities.

A committee roster follows. The Institute of Medicine is a private, non-profit organization that provides health policy advice under a congressional charter granted to the National Academy of Sciences. The study was funded by the National Institutes of Health. It was requested by Congress.
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*Copies of Scientific Opportunities and Public Needs: Improving Priority Setting and Public Input at NIH are available from the National Academy Press at the mailing address in the letterhead; tel. (202) 334-3313 or 1-800-624-6242. The cost of the report is $26.00 (prepaid) plus shipping charges of $4.00 for the first copy and $.50 for each additional copy. Reporters may obtain a copy from the Office of News and Public Information at the letterhead address (contacts listed above).

INSTITUTE OF MEDICINE

Division of Health Sciences Policy

Committee on the NIH Research Priority-Setting Process

Leon E. Rosenberg, M.D.(1,2) (chair)
Professor, Department of Molecular Biology, and
Woodrow Wilson School of Public and International Affairs
Princeton University
Princeton, N.J.

John Alderete, Ph.D.
Professor, Department of Microbiology
University of Texas Health Science Center, San Antonio

Kenneth B. Chance, D.D.S.
Dean and Professor of Endodontics, School of Dentistry
Meharry Medical College
Nashville, Tenn.

Caron Chess, Ph.D.
Director, Center for Environmental Communication
Cook College
Rutgers University
New Brunswick, N.J.

Purnell Choppin, M.D. (1,2)
President
Howard Hughes Medical Institute
Chevy Chase, Md.

James W. Curran, M.D., Ph.D. (2)
Dean and Professor of Epidemiology
Rollins School of Public Health
Emory University, Atlanta

David Cutler, Ph.D.
Professor of Economics, Department of Economics
Littauer Center
Harvard University
Cambridge, Mass.

Sue Donaldson, Ph.D., R.N. (2)
Professor and Dean, School of Nursing, and
Professor of Physiology, School of Medicine
Johns Hopkins University, Baltimore

Baruch Fischhoff, Ph.D. (2)
University Professor, Department of Engineering
and Public Policy, and Department of Social and
Decision Sciences
Carnegie Mellon University, Pittsburgh

Sid Gilman, M.D. (2)
William J. Herdman Professor and Chair, Department of Neurology
University of Michigan, Ann Arbor

Robert L. Hill, Ph.D. (1,2)
James B. Duke Professor, Department of Biochemistry
Duke University Medical Center
Durham, N.C.

Ralph Horwitz, M.D. (2)
Professor and Chair, Department of Internal Medicine
Yale University School of Medicine
New Haven, Conn.

Tom Kelly, M.D., Ph.D. (1)
Boury Professor and Chair, Department of Molecular Biology and Genetics
Johns Hopkins University, Baltimore

Anne Petersen, Ph.D.
Senior Vice President, Programs
W.K. Kellogg Foundation
East Battlecreek, Mich.

Susan C. Scrimshaw, Ph.D. (2)
Dean, School of Public Health
University of Illinois, Chicago

Roger Unger, M.D. (1)
Professor of Internal Medicine
University of Texas Southwestern Medical Center, Dallas

Myrl Weinberg, CAE
President
National Health Council
Washington, D.C.

Linda S. Wilson, Ph.D. (2)
President
Radcliffe College
Cambridge, Mass.

Adam Yarmolinsky, LL.B. (2)
Regents Professor of Public Policy
University of Maryland System
Washington, D.C.

INSTITUTE OF MEDICINE STAFF

Andrew Pope, Ph.D.
Director, Health Sciences Policy Program

Geoffrey French
Research Associate

_________________________________________
(1) Member, National Academy of Sciences
(2) Member, Institute of Medicine




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