Re: Question for Prof. Elliot
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Posted by Sarah on 16:54:59 2010/06/15
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Re: Question for Prof. Elliot posted by elliott
Thanks Prof. Elliot. Unfortunately, I already have such a system. I have had a pump for about 5 years. The new CGMS I received in 2008. We had to pay about $8000 for it since pumps are not covered for T1 adults in my province. It hasn't helped much, although the pump has stopped the seizures. I am still out of control and hypo unaware. I still can't predict my insulin needs and my basal and ratio needs seem to suddenly change on a whim.
Apparently I am too labile for the CGMS to really be accurate or reliable. My experience has been very poor with the CGMS.
If I receive the transplant in Edmonton, it is my understanding that it will be paid for by the province. I am trying to find out if the drugs will be covered by my province. We do have good private insurance for prescriptions, so that is another option to explore.
I also am very hesitant to go for the transplant primarily due to the risks and drug risks. Worst case the transplant fails, and I am left with organ damage and/or cancer. The medications also have nasty daily side effects. However, I am between a rock and a hard place. Another main concern was that an islet transplant would exclude the possibility of future treatment with LCT.
Do you think that the immune suppressing drugs (even after being discontinued) can potentially cause lingering issues that can affect the encapsulated islets? This is what I am scared of. Also, will having human islets implanted in my liver affected placement of the encapsulated islets?
Thanks Prof Elliot.
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