Re: Cheating Destiny (book excerpt)
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Posted by Maureen on 21:19:31 2006/07/10
In Reply to:
Re: Cheating Destiny (book excerpt) posted by klausen
I was dx at age 16. There was one other child and I on the pediatric unit that week. The other little boy was 5 months old and was there for "failure to thrive". He had exactly one visitor (his mother) who came once, at 3 am and stayed for less than 10 minutes. Despite tube feedings and bottle feedings, he was continuing to get worse. I literally had my first visitor within 20 minutes of being admitted, and between family, friends, and teachers, it was constant. I was bored and took to holding him and even feeding him (all the docs and nurses said it couldn't harm as he was already doing so bad). He started to maintain, then gain weight as this occured. One night, I was sitting at the nurses station feeding him, and a doc, a residdent, and the nurses were there. The doc and nurses said something to the effect to the resident "See, we told you that the only thing wrong with him was that he isn't being loved, and that is what he is literally dying from". I made up my mind at that point, that no matter what, THAT (dying from lack of love) is the worst fate for anyone. And no matter what happens to me, I will not die from lack of love. So things can always be much much worse. It is the one thing I hope I give my kids, a sense that they are loved, and in turned for in the best way that they can be (at some point they will have to choose to continue to live in that environment or leave it for a different one).
A group I was in today, we were all young mothers all in our late 20's- early 30's, all of us look healthy. For whatever reason, health issues arose. It turns out, I have T1 and Celiac, another has MS, and a 3rd her spouse has MS. My husband's best friend from childhood was on and off kidney dialysis from the age of 7 (depending on if one of his kidney transplants was or was ont working at the time). He passed away last year. We dwelled less on that then the fact a man made a comment about breastfeeding in public is like urinating in his coffee mug. Everyone has issues, for the most part we don't get to choose them. Life is full of risks. Yes diabetes effects my quality of life, but it does not ruin it. I wouldn't wish it on anyone, but it isn't mean you life is totally ruined. Like I said before, to me my life would only be totatly ruined if I didn't love anyone, and no one loved me.
Maureen
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